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From Feeling Broken to Looking Beyond Broken: Palestinian Mothers’ Experiences of Having a Child With Spina Bifida

On  March 30 2017  Maha Sudki Hmeidan Nahal, Helena Wigert, Asma Imam, and Asa B. Axelsson published a new study in Journal of Family Nursing
1–26 titled " From Feeling Broken to Looking Beyond Broken: Palestinian Mothers’ Experiences of Having a Child With Spina Bifida" The article aimed to illuminate mothers’ lived experience of having a child with SB in Palestine. The results of this study demonstrated that This study reveals a lack of counseling and support of the mothers and families at the period of diagnosis, resulting in despair when confronted with their child’s disability. The lack of support created constant anxiety and uncertainty about their child’s health and future. Arab-Muslim mothers lived with the burden of daily stressors and challenges to caring for their child, and experienced a difficult life situation with isolation and lack of formal support from health care and society and no expectation of future relief.

For more information about the study, please contact the main author at This email address is being protected from spambots. You need JavaScript enabled to view it. or the scientific research office at This email address is being protected from spambots. You need JavaScript enabled to view it..

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